This site has been initiated and developed by Ipsen Ltd.

Everything you need to know about neuroendocrine tumours (NETs)

Learn About NETs

What Are Neuroendocrine Tumours (NETs)? What Causes NETs? Symptoms of NETs How Common Are NETs?

Types of NETs What Will Happen Long Term? Your Care Team Questions to Ask Your Doctor

Diagnosing NETs

Diagnostic Tests Tumour Marker Tests Imaging Methods

Scintigraphy Scans Other Tests For NETs

Treating NETs

How Are NETs Treated? Liver-directed Therapies Carcinoid Symptom Treatments

Side Effects of NETs Treatments Clinical Trials For NETs

Learn how to cope and
live with neuroendocrine tumours (NETs)

Information about the emotional, physical and social challenges of living with NETs.

Coping With Emotions Talking About NETs Gathering Information About NETs Travelling With NETs

NETs and Work Information For Caregivers Keeping Track of Your Medical Care

Practical Tips & Tools

Keeping Healthy Diet and Nutrition Managing Symptoms and Side Effects Hobbies and Interests Preparing for Imaging Scans

Hear from others
with NETs

“My diagnosis was through complete chance, and was triggered when I told a nurse I’d lost weight.”

Ronny

View Ronny's story

View all patient stories

Supporting you throughout your journey

If you’re living with neuroendocrine tumours (NETs) and you’re looking for clinics in your region and patient support services, then you’ve come to the right place. Search through the Get Support resources listed here to see if any of these can help you.

Frequently Asked Questions (FAQs) Find A NETs Clinic NETs Patient Support Groups

What are you looking for?

Information and support to help people
living with neuroendocrine tumours (NETs)

Learn about NETs

Learn about carcinoid tumours, GI-NETs, pancreatic NETs and lung NETs, and the symptoms of NETs

Learn About NETs

Diagnosing NETs

Find out how NETs are diagnosed and the tests that healthcare professionals may use to monitor NETs

Diagnosis & Testing

Treating NETs

Read about treatment options for NETs, including surgery, radiotherapy and medications

Treatment Options

FAQs

Have a question about NETs? See if it has been answered by one of our experts

View FAQs

Talking about NETs

Letting others know how you feel is an important part of living with NETs

Talking About NETs

NETs and work

Many people with NETs continue to work and are able to maintain a normal life during their treatment

NETs And Work

“My diagnosis was through complete chance, and was triggered when I told a nurse I’d lost weight.”

Ronny

View Ronny's story

View all Patient Stories

Get support

Living with NETs is not something that you have to do alone. There is always help and support available if needed.

In this section of the Living with NETs website you can find patient support groups and a list of specialist NETs clinics. You can also find answers to questions people diagnosed with neuroendocrine cancers often ask.

NETs Patient Support Groups

Patient support groups for NETs can often provide social and emotional support

Find Patient Support Groups

Find a NETs Clinic

View a list of specialist NETs clinics and NETs hospital units in Europe

Find a NETs Clinic

We use cookies to ensure that we give you the best experience on our website. Click here for more information.

Thank you

Thank you for taking the time to share your tip, we will evaluate it and it may be added to this website in the future.

For updates on future content like this, please provide your email address

Living with NETs - the home of neuroendocrine tumours information and support

Everything you need to know about neuroendocrine tumours (NETs)

Learn About NETs

Diagnosing NETs

Treating NETs

Learn how to cope and
live with neuroendocrine tumours (NETs)

Practical Tips & Tools

Hear from others
with NETs

“My diagnosis was through complete chance, and was triggered when I told a nurse I’d lost weight.”

Supporting you throughout your journey

What are you looking for?

Information and support to help people
living with neuroendocrine tumours (NETs)

Learn about NETs

Diagnosing NETs

Treating NETs

FAQs

Living with NETs

Practical tips and tools

Talking about NETs

NETs and work

“My diagnosis was through complete chance, and was triggered when I told a nurse I’d lost weight.”

Ronny

Get support

NETs Patient Support Groups

Find a NETs Clinic

This site is intended for a UK audience only. SOM-UK-003737 September 2018

Everything you need to know about neuroendocrine tumours (NETs)

Learn About NETs

Diagnosing NETs

Treating NETs

Learn how to cope and live with neuroendocrine tumours (NETs)

Practical Tips & Tools

Hear from others with NETs

“My diagnosis was through complete chance, and was triggered when I told a nurse I’d lost weight.”

Supporting you throughout your journey

What are you looking for?

Information and support to help people living with neuroendocrine tumours (NETs)

Learn about NETs

Diagnosing NETs

Treating NETs

FAQs

Living with NETs

Practical tips and tools

Talking about NETs

NETs and work

“My diagnosis was through complete chance, and was triggered when I told a nurse I’d lost weight.”

Ronny

Get support

NETs Patient Support Groups

Find a NETs Clinic

This site is intended for a UK audience only. SOM-UK-003737 September 2018

Learn how to cope and
live with neuroendocrine tumours (NETs)

Hear from others
with NETs

Information and support to help people
living with neuroendocrine tumours (NETs)