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Everything you need to know about neuroendocrine tumours (NETs)

Learn About NETs

What Are Neuroendocrine Tumours (NETs)? What Causes NETs? Symptoms of NETs How Common Are NETs?

Types of NETs What Will Happen Long Term? Your Care Team Questions to Ask Your Doctor

Diagnosing NETs

Diagnostic Tests Tumour Marker Tests Imaging Methods

Scintigraphy Scans Other Tests For NETs

Treating NETs

How Are NETs Treated? Liver-directed Therapies Carcinoid Symptom Treatments

Side Effects of NETs Treatments Clinical Trials For NETs

Learn how to cope and
live with neuroendocrine tumours (NETs)

Information about the emotional, physical and social challenges of living with NETs.

Coping With Emotions Talking About NETs Gathering Information About NETs Travelling With NETs

NETs and Work Information For Caregivers Keeping Track of Your Medical Care

Practical Tips & Tools

Keeping Healthy Diet and Nutrition Managing Symptoms and Side Effects Hobbies and Interests Preparing for Imaging Scans

Hear from others
with NETs

“It was very hard for me to speak to my children, to say, ‘I have cancer’, because I didn’t know a lot about neuroendocrine cancer.”

Sonia

View Sonia's story

View all patient stories

Supporting you throughout your journey

If you’re living with neuroendocrine tumours (NETs) and you’re looking for clinics in your region and patient support services, then you’ve come to the right place. Search through the Get Support resources listed here to see if any of these can help you.

Frequently Asked Questions (FAQs) Find A NETs Clinic NETs Patient Support Groups

What are you looking for?

Learn about NETs

If you have – or someone you know has – neuroendocrine tumours (NETs) or possible symptoms, then learning about NETs can help you understand the condition better, and perhaps reassure you that NETs are an uncommon type of cancer that many people can live with for years.

This section of the website gives you information that can help you understand NETs, which you may also hear referred to as carcinoid tumours, GI-NETs, GEP-NETS, pancreatic NETs and lung NETs. Remember to speak to your doctor about your condition and ways of coping; the information shown here should not replace their professional advice.

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Living with NETs - the home of neuroendocrine tumours information and support