There are a number of NET support groups that give you and your family a chance to share your experiences with other NET families.
Contacting other people with NETs through these support groups may help you to learn new ways of coping with the changes that may occur after you are diagnosed with NETs.
These groups can also provide you with further information on specific topics of interest within a supportive environment.
Some groups also have patient forums on the Internet for people with NETs and their carers, to share ideas, concerns and tips about living with NETs.
“Try and join a local patient association. You will make friends who understand you, get good advice, and receive reliable information about NETs including updates on recent research and activities to help people living with NETs.”
Your specialist doctor may be able to give you information about other NETs patient groups within the United Kingdom:
Learn about carcinoid tumours, GI-NETs, pancreatic NETs and lung NETs, and the symptoms of NETs
Read practical tips from others to help make your life with NETs easier
Information about the emotional, physical and social challenges of living with NETs