This site has been initiated and developed by Ipsen Ltd.

Everything you need to know about neuroendocrine tumours (NETs)

Learn About NETs

What Are Neuroendocrine Tumours (NETs)? What Causes NETs? Symptoms of NETs How Common Are NETs?

Types of NETs What Will Happen Long Term? Your Care Team Questions to Ask Your Doctor

Diagnosing NETs

Diagnostic Tests Tumour Marker Tests Imaging Methods

Scintigraphy Scans Other Tests For NETs

Treating NETs

How Are NETs Treated? Liver-directed Therapies Carcinoid Symptom Treatments

Side Effects of NETs Treatments Clinical Trials For NETs

Learn how to cope and
live with neuroendocrine tumours (NETs)

Information about the emotional, physical and social challenges of living with NETs.

Coping With Emotions Talking About NETs Gathering Information About NETs Travelling With NETs

NETs and Work Information For Caregivers Keeping Track of Your Medical Care

Practical Tips & Tools

Keeping Healthy Diet and Nutrition Managing Symptoms and Side Effects Hobbies and Interests Preparing for Imaging Scans

Hear from others
with NETs

“My diagnosis was through complete chance, and was triggered when I told a nurse I’d lost weight.”

Ronny

View Ronny's story

View all patient stories

Supporting you throughout your journey

If you’re living with neuroendocrine tumours (NETs) and you’re looking for clinics in your region and patient support services, then you’ve come to the right place. Search through the Get Support resources listed here to see if any of these can help you.

Frequently Asked Questions (FAQs) Find A NETs Clinic NETs Patient Support Groups

What are you looking for?

Patient support groups

Patient support groups for people living with neuroendocrine tumours (NETs) can often provide you with social and emotional support, as well as details of local NETs events that you may be able to attend.

Find a NETs Clinic

View a list of specialist NETs clinics and NETs hospital units in Europe

Find a NETs Clinic

There are a number of NET support groups that give you and your family a chance to share your experiences with other NET families.

Contacting other people with NETs through these support groups may help you to learn new ways of coping with the changes that may occur after you are diagnosed with NETs.

These groups can also provide you with further information on specific topics of interest within a supportive environment.

Some groups also have patient forums on the Internet for people with NETs and their carers, to share ideas, concerns and tips about living with NETs.

Helen, Patient – Living with NETs

“Try and join a local patient association. You will make friends who understand you, get good advice, and receive reliable information about NETs including updates on recent research and activities to help people living with NETs.”

View Helen’s story >

Your specialist doctor may be able to give you information about other NETs patient groups within the United Kingdom:

NET Patient Foundation

AMEND: The Association for Multiple Endocrine Neoplasia Disorders

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Get support

If you are living with neuroendocrine tumours (NETs) and you are looking for clinics in your region and patient support services, then you have come to the right place. Search through the resources listed here to see if any of these can help you.