This site has been initiated and developed by Ipsen Ltd.
This site has been initiated and developed by Ipsen Ltd.

Coping with a diagnosis of NETs


The time between appointments to diagnose or monitor your condition may be days, weeks, or months, which can also be stressful.

Try not to worry too much, however, as NETs are often slow growing tumours and your cancer should not be getting any worse before your next visit. If you are worried, call your doctor or nurse, or talking to your friends and family may help.

The good news is that treatments and support for neuroendocrine cancers are improving all the time, and many people with NETs can lead active, healthy lives, both during and after treatment.

This website includes videos of patient stories and links to NETs patient support groups in different countries that might help you deal with your reactions to NETs.

Patient*, Living with NETs

“It was overwhelming and very scary to be faced with a cancer diagnosis but it’s great to know that there are people with NETs out there with long survival rates.”

* Quote from patient who completed an anonymous survey conducted in five countries in 2015

What emotions are normal?

You might experience any of the following emotions after being diagnosed with NETs and during treatment.

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Find the support you need

Practical Tips and Tools

Read practical tips from others to help make your life with NETs easier

Go to tips and tools

NET patient support groups

NETs Patient Support Groups

Patient support groups for NETs can often provide social and emotional support

Find Patient Support Groups

Learn about NETs

Learn about carcinoid tumours, GI-NETs, pancreatic NETs and lung NETs, and the symptoms of NETs

Learn About NETs

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This site is intended for a UK audience only. SOM-UK-003737 September 2018