This site has been initiated and developed by Ipsen Ltd.
This site has been initiated and developed by Ipsen Ltd.


“It reassures me to know what’s facing me, and what I should do. I feel like I am part of a team and they are all going to look after me.”

I already had the symptoms years and years ago without ever thinking about neuroendocrine cancer, as I’d never even heard of this disease. I went to the doctor – I’ve always been very careful about my visits – I had thyroid problems, which explained maybe flushing and perspiration – I also had kidney problems, which explained the pain in my side.

They did suspect a grumbling appendix but it grumbled for a long, long time, and about 20 years ago I had tests and they found that I had an irritable bowel syndrome and removed a few nodules and that I was told, was the end of that story. The treatment I was given was paracetamol. That was in my early fifties.

Life went on. I had bouts of perspiration and flushing, I was told I was nervous – as I am a nervous person – I was pre-menopause, menopause, post-menopause, the flushing continued.

About 5 years ago I started having to go to the loo maybe four or five times a day – I never thought about it really. Still going for my 6 monthly check-ups etc.

One day I had a very severe pain in my side, which lasted for two or three days. I was just under my ribcage. My GP said “I don’t like the sound of this, go and have an echography.

“The radiologist said “you have several things wrong with you – I think you have a carcinoid tumour on your appendix, and I can see that there are several tumours on your liver – get into hospital as fast as you can.”

That was very scary, but I would say I’ve had the symptoms for around 20 years, and I’ve been treated for the last 3 years.

I’m very pleased with my treatment – I’ve been on it for 3 years. If you look on the Internet for ‘carcinoid cancer’ you might be very unlucky and hit on a prognosis of 3 years for your life – my tumours haven’t budged for 3 years, and I’m really happy with my treatment.

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This site is intended for a UK audience only. SOM-UK-003737 September 2018